Common Questions about Your Diagnosis of Pilonidal Disease
I’ve been diagnosed as having coccydynia. Could this be a pilonidal cyst/abscess?
Some patients with pilonidal disease are told that they have a condition called coccydynia. Coccydynia, or tailbone pain, is caused by trauma to the tailbone (also termed the coccyx). The injury can be acute, from a fall, or chronic, from repeatedly sitting on hard surfaces or riding a horse, for instance.
Pilonidal disease also can arise after trauma, such a fall. Distinguishing between pilonidal disease and coccydynia can be difficult. The key to determining which condition is causing discomfort is to identify the midline pits or pores that are seen in pilonidal disease. Most of the time, swelling (from an abscess under the skin) is also present in pilonidal disease. Swelling is rare in coccydynia.
Common Questions about Surgery
How long does the cleft lift procedure take?
The operation takes a little more than an hour. You will be in the recovery area for an hour to an hour and a half. During this time the nurses will go over all of your postoperative instructions and the drainage procedure with you and your helper.
What type of anesthesia will I have?
Most patients receive a spinal anesthetic. It’s very safe (many women have this type of anesthetic when they deliver babies). Don’t worry, once you’re positioned, you will be sedated, sleep for the procedure and won’t be aware of feeling a thing.
BEFORE SURGERY: You should consider buying the following:
- Black tight-fitting underwear (Fruit of the Loom briefs work well) – they keep the gauze on the wound without tape and don’t reveal the gore.
- Balneol – a great cleanser that helps clean after a BM. Just put a small amount on the TP and wiping after a BM is easy.
- MOM (Milk of Magnesia) – if you become constipated after surgery, take 2 Tablespoons every 6 hours until you have a BM.
Patient Instructions and Forms
Download a New Patient History Form, and post-operative instructions for Pilonidal Surgery and General and Colorectal Surgery.
Common Questions After Surgery
What will recovery be like?
Most patients experiencevery little discomfortfrom the operation. Most individuals experience some numbness on the side of the flap that can take around 6-8 weeks to completely go away. The numbness always goes away.
The discomfort is usually well controlled with the two prescribed pain medications: Ibuprofen and a narcotic (typically Oxycodone). The Ibuprofen should be taken regularly, three times a day with meals, and the narcotic pain reliever should be taken only as needed for additional discomfort. Please take all pain medications with food or they may cause nausea.
Additionally, you will be prescribed an antibiotic for two weeks after the procedure to decrease your chance of developing a postoperative infection.
Do I really need help after the operation?
Having someone help you with the drain the wound is extremely important for proper healing. It’s really challenging to roll gauze on your backside in an effective manner, which is why you need a partner to do it for you.
Let’s face it: You’ve decided to have an operation to fix this terrible condition. You can allow parent, girlfriend, boyfriend, or roommate; help you to conquer this disease!
Watch this how-to video to see how to drain the wound, a procedure that you’ll need to do at least two times per day.
Can I shower after surgery?
Yes. You can shower the morning following surgery. Make certain to remove all of the gauze first. It’s important to keep the wound dry after showering. Soaking in a bathtub, however, is not permitted for four weeks or until the wound is fully healed.
Is there any special care for the wound?
I recommend that you try and keep the wound clean and dry. Remove the gauze bandages when having a bowel movement or showering. Please clean the wound carefully after a bowel movement. Wet wipes or Balneol lotion on toilet paper works best. After cleaning or showering, blot the wound and your perianal area carefully with a towel, and then dry completely with a hairdryer on the “low” setting.
Tight-fitting underwear is best to wear while recovering from the cleft lift as it helps hold dressings over the wound and compresses the operative site (discouraging fluid accumulation). The dressing applied after surgery is there to protect your clothing. Don’t use tape to hold gauze in place as it can injure your incision – instead use tight-fitting underwear to hold dressings in place.
Steri-strips (thin paper-like tapes with parallel fibers in them) will be placed on the skin across your incision. Don’t remove them. They are intended to support the wound and should be left in place until they fall off or when the drain is taken out.
What medications will I prescribe after surgery?
The majority of patients will be prescribed the following medications:
- Ibuprofen, a NSAID that relieves pain and decreases inflammation
- A narcotic pain reliever (typically Oxycodone)
- And, an antibiotic for two weeks
- you may want to purchase Docusate Sodium, a stool softener, which is over the counter and not paid for by insurance companies. Please take 2 tablets of the over the counter variety twice a day for the period time you are taking the narcotic pain reliever.
All medications should be taken with food, or they may induce nausea. The Ibuprofen is the more important of the pain relievers as it decreases inflammation. Ibuprofen should be taken three times a day for 10 days, while the narcotic should only be taken every 6 hours if needed (and discontinued once your pain is adequately relieved by the Ibuprofen). Also, narcotics may cause constipation, so you should only take narcotics if you need to.
Should you feel constipated (miss having a bowel movement for a day or two), please take 2 tablespoons of Milk of Magnesia (an over the counter laxative readily available at all pharmacies) three times a day until you have a bowel movement.
Please let Dr. Sternberg, or his office staff, know if you have any allergies or prior reactions to the medications listed above, well in advance of surgery.
Can I sit down immediately after the procedure?
Yes. Sitting is actually encouraged as it helps push any fluid that accumulates out from under the flap.
What if I become nauseated after surgery?
Nausea for a day or so after surgery is common. On the day of the operation, it’s often due to the anesthetic. Oral anti-nausea medication is often not helpful and has many side effects, so I don’t like to prescribe it. Most commonly, nausea is due to the pain medications oxycodone or hydrocodone, or Ibuprofen. Please make certain that you never take any pain medication on an empty stomach.
Should you develop nausea please hold your pain medications for several hours and try and nap. Place a cool, moist cloth on your forehead. You may resume the pain medications with food after the nausea subsides. Best to just take the ibuprofen and avoid the narcotic (oxycodone or hydrocodone). Remember; never take any of your prescribed medications on an empty stomach. A small amount of food such as bread or toast will help settle your stomach!
How do I take care of the drain?
- You will need to change the gauze dressing covering your wound several times a day especially for the first few days. Use gauze liberally to protect your clothing and furniture. There are white fibrous pieces of tape crossing your incision; these are called Steri-Strips. Leave the Steri-Strips in place as they support your incisicion.
- You have a passive drain which looks like a rubber band that extends upwards from the lower part of your incision to a small hole at the top of the flap. It keeps the top hole open so fluid can drain out from under your flap so the flap can stick to the underlying tissue. For the first few days don’t be alarmed if the fluid looks quite bloody. It will become pink and may turn a light yellow over time.
- Rolling the flap: For the first 3-4 days after surgery and before your partner rolls, HAVE your partner poke the upper hole with a non-sterile Q-tip around 1 inch under the flap at a shallow angle to make certain that the hole isn’t clogged). 3 times a day for the 7-9 days your drain will be in, someone will need to roll rolled-up gauze up the flap side (the flap is the side with the superior drain hole) to evacuate fluid from under the flap. Please lie down on a firm surface. Have your drain-helper roll from the bottom to the top side of the flap to encourage fluid to drain through the top hole. Don’t be alarmed if there is some fluid that drains from the top of the incision. Don’t try and milk fluid from the lower drain hole. There is no reason to roll on the side opposite the flap.
- Please don’t exercise while the drain is in place. Walking is okay. You are allowed to sit on the operative site immediately after surgery (it actually helps push fluid from under the flap).Once the drain is removed, you may begin to exercise, but please don’t place excessive stretch or pressure on your wound (deep squats, athletics where you can get knocked on your back-side) or submerge in water for 1 month after the drain is removed.
- After several days the amount of drainage will decrease and you will feel more secure leaving the house and possibly going to work or school.
That incision looks like it comes pretty darn close to the anus. Will having a bowel movement be a problem?
In patients with long clefts and in those patients with pits or unhealed wounds approaching the anus, the surgical incision needs to end close to the anus. Nonetheless, having a bowel movement shouldn’t be much of a problem. Several pointers:
- Don’t get constipated!Take the stool softener and Milk of Magnesia if needed (see the next FAQ section)
- Use wet wipes or Balneol (better) to clean after a bowel movement for several weeks after surgery.
- Showering (not bathing) after a bowel movement is a good idea for the first several days after surgery.
Will I become constipated?
Not as a result of the procedure. But – taking a narcotic can definitely lead to constipation, and the prescribed stool softener should be taken regularly. If you go for a day without a bowel movement, please buy Milk of Magnesia. It is available over the counter. Take 2 tablespoons every 8 hours until you have a BM.
My buttocks are black and blue! What do I do?
Bruising after the cleft lift is common. It’s very important that you see Dr. Sternberg 24-48 hours after your surgery (this appointment should have been set-up when you scheduled your surgery). The purpose of this appointment is to: 1) insure that your drain-helper is properly performing the drain procedure, and 2) to make certain that a blood clot hasn’t accumulated under the flap the night after surgery (often responsible for bruising). If the latter has occurred, Dr. Sternberg should be able to evacuate the blood clot in the office without difficulty.
The incision separated a bit, what do I do?
This occurs fairly often due to the fragility of the skin in the area (due to infection before or at the time of surgery) and tension from walking and sitting. Despite the skin separation, these wounds will heal, so don’t panic!
Other Common Questions
Do I need to make a follow-up appointment one day after surgery?
Yes! Please make an appointment to see Dr. Sternberg for the day following surgery and bring your drain helper. I will want to go over the rolling procedure with both of you in the office, as it is critical for a good outcome. Also make an appointment for around a week after surgery to have the drain removed. If you live far from San Francisco, I will show you and your helper how to remove the drain yourself, so you can travel back home. Don’t worry; removing the drain is super easy and doesn’t hurt at all!
Will I have a scar?
15-22 cm (6-8 inches) in length, depending on the length of your natal cleft.
When can I return to work?
Most patients can return to work four days or so after surgery. It’s perfectly acceptable, however, to take the week off until your drain is removed.
When can I go back to sports?
Please don’t exercise while the drain is in place. Walking is okay. You are allowed to sit on the operative site immediately after surgery (it actually helps push fluid from under the flap). Once the drain is removed, you may begin to exercise.
When returning to physical activity, please avoid anything that causes pain, don’t submerge in the water, and avoid rigorous activities where you could possibly fall on your bottom (skiing and snowboarding are bad early activities)for a month after the drain is removed.
For those patients that have had a prior failed operation or very complex pilonidal disease (a large wound close to the anus), I often ask them to refrain from sports for a few weeks more.
What is the likelihood of a complication?
- Around 10-15% of patients may have some minor incisional separation near the anal end of the wound. This is generally not a problem and should not delay recovery.
- An infected fluid collection can occur under the flap but is rare. It may delay your recovery; however, you should still end up with an excellent result. Since changing the type of drain placed at the time of surgery to a ‘passive’ drain, rare complications have occurred.
Should I regularly shave the area or have laser hair removal?
Shaving before or after a cleft lift operation is not advised and it may cause problems. You should know that:
- The disease is not caused by ingrown hairs.
- Hairs that deposit in pilonidal wounds are shed hairs that may come from areas other than the buttocks and natal cleft.
- The skin of the natal cleft is sensitive, and small nicks and cuts from shaving can contribute to infections. Chemical hair removers are very irritating.
- Once you have undergone a successful cleft lift procedure, you are no longer at significant risk of developing a recurrent pilonidal abscess.
- Laser hair removal is expensive, time-consuming, embarrassing, and unnecessary for the above reasons.
Will I be cured?
Most likely! The intent of the cleft lift procedure is to prevent recurrent pilonidal disease. In Dr. Sternberg’s last 757 Cleft Lift patients, only 6 required a second operation and all 6 are cured. That’s pretty good results.
Read success stories from surgery patients
- ‘I’m back to doing my daily activities again and even more’I honestly have no clue where to start. But long story short, the first time I started to notice my problem with Pilonidal Disease was back in December of 2018. Went to urgent care the next day and all theyContinue reading “‘I’m back to doing my daily activities again and even more’”
- Patient Prep: Traveling to San Francisco for Pilonidal care during COVID-19This has been a difficult eight months for all of us. The time has been particularly challenging for patients with Pilonidal Disease, particularly those who must to travel outside of their local medical community to find a surgeon who canContinue reading “Patient Prep: Traveling to San Francisco for Pilonidal care during COVID-19”
- ‘The “Guru” of pilonidal disease’Dr. Sternberg saved my son from years of problems and potential surgeries! He is an amazing doctor and we feel so fortunate to have been referred to him. My 16-year-old son had pilonidal disease and was treated at Urgent CareContinue reading “‘The “Guru” of pilonidal disease’”
Contact our San Francisco Office
To learn more about treating your Pilonidal Disease with surgery and the Cleft Lift procedure, contact our office staff for information or to schedule an appointment.
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